Jose had a long day but is doing very well. Today's treatment involved five hours of sclerotherapy into the facial malformation. This was done under general anesthesia, which has historically been difficult for Jose to recover from without stomach issues. His did very well today with this, and tonight at 6 was drinking apple juice. The doctors placed Jose in pediatric intensive care due to the large amount of facial swelling following the injections. I know it is hard to imagine the malformation being any bigger than it already was!
Dr. Waner and Dr. Berenstein will make a decision early in the morning on doing another set of injections, and if they decide to do this, the surgery will be delayed at least until Friday. This is a very big AV malformation, and the foster mother was told by the doctors today that Jose's life expectancy without surgery would have only been into his early 20's.
Margaret and Scott are holding up well, and one of them will be with Jose each night. They are very appreciative of all of the kind wishes being expressed on Jose's behalf. Our translator called Jose's parents in his Guatemalan village tonight to update them on the progress.
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Twenty Years of COTA: Perspective and Memories from Warren Brandwine
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